Charity Summer Ball 16th September 2016 KC Lightstream Stadium

About Jack
Jack is a smiley happy little boy. He is really lucky to have a big brother who adores him and who he adores. Jack loves the outdoors.

Jack is a happy little boy who has severe learning and physical disabilities. Jack has Global Development delay, Gross Motor Disorder and Brain Atrophy. Jack was diagnosed with a rare syndrome called Mowat Wilson Syndrome on 03/04/12. He suffers life threatening seizures as well as kidney, bowel and eye problems.
We are trying to raise money by holding different events to make a sensory garden for Jack, which is a safe environment where he can enjoy where he likes to be most of all outside, he loves all weathers and it will mean so much to him and us as a family.
We have recently ( August) found out about stem cell treatment in America, which entails cells been taken and grown then implanted back in, as Jack has a mutation of a gene and not a deletion it means something like this could be possible for Jack, if we could go to Kansas and be part of this there is a possibility Jack could walk or talk or even maybe both. We are now concentrating on fundraising for this and have been in touch with the Dr's in America, they have requested Jacks medical notes and the results of his MRI scan so this is a positive sign.